April 13, 2020
In collaboration with Sanford Health, Sioux Falls, SD – the TGA Project announces the Transient Global Amnesia Patient Data Registry is open for your access.
Why a TGA Registry?
“Based at Sanford Research, a nonprofit research institution, CoRDS is a centralized international patient registry for all rare diseases. We coordinate the advancement of research into 7,000 rare diseases. Here’s how:
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We work with patient advocacy groups, individuals and researchers.
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We capture health information from individuals with a rare diagnosis, undiagnosed patients, unaffected carriers or at-risk patients.
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We connect researchers and patients and notify our participants of emerging clinical trials.
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We make the registry accessible. Participants can enroll for free and researchers can access it for free.” https://research.sanfordhealth.org/rare-disease-registry
The Registry has a 3-part enrollment process. Each step is more detailed and involves more time. Each step is also designed to help future research scientists develop protocols for future research, studies, white papers, and/or clinical trials.
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Your participation will be at no cost.
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Participation will not guarantee your selection in a TGA research effort.
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Your information will be de-identified and protected by Sanford Research.
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TGA Project will only have access to the number of participants.
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TGA Project has no need for your information or data.
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TGA Project has no input to start dates, selection processes, or other research details.
If you have any questions please email us at: